Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey
Date
2021-02-11
Journal Title
Journal ISSN
Volume Title
Publisher
BMC (part of Springer Nature)
Abstract
Background: The scale-up of evidence-based innovations is required to reduce waste and inequities in health and
social services (HSS). However, it often tends to be a top-down process initiated by policy makers, and the values of
the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the
scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully
and equitably involving patients and the public in the science and practice of scaling up in HSS.
Methods: We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will
perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge
translation approach. This approach involves extensive participation of a network of stakeholders interested in
patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a
systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers
Manual. We will use the following eligibility criteria: (1) participants—any stakeholder involved in creating or testing
a strategy for PPI; (2) intervention—any PPI strategy proposed for scaling-up initiatives; (3) comparator—no
restriction; (4) outcomes: any process or outcome metrics related to PPI; and (5) setting—HSS. We will search
electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand search
relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will
independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report
results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi
survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an
acceptable degree of agreement on research priorities.
Discussion: Our findings will advance understanding of how to meaningfully and equitably involve patients and
the public in scaling-up initiatives for sustainable HSS.
Description
CITATION: Ben Charif, A., et al. 2021. Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey. Systematic Reviews, 10:55, doi:10.1186/s13643-021-01597-6.
The original publication is available at https://www.cochranelibrary.com
The original publication is available at https://www.cochranelibrary.com
Keywords
Patient and public involvement, Public health -- Evaluation, Public health -- Technological innovations, Medical cooperation, Delphi method
Citation
Ben Charif, A., et al. 2021. Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey. Systematic Reviews, 10:55, doi:10.1186/s13643-021-01597-6