Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey

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dc.contributor.authorBen Charif, Alien_ZA
dc.contributor.authorPlourde, Karine V.en_ZA
dc.contributor.authorGuay-Belanger, Sabrinaen_ZA
dc.contributor.authorZomahoun, Herve T. V.en_ZA
dc.contributor.authorGogovor, Amedeen_ZA
dc.contributor.authorStraus, Sharonen_ZA
dc.contributor.authorBeleno, Ronen_ZA
dc.contributor.authorKastner, Kathyen_ZA
dc.contributor.authorMcLean, Robert K. D.en_ZA
dc.contributor.authorMilat, Andrew J.en_ZA
dc.contributor.authorWolfenden, Lukeen_ZA
dc.contributor.authorPaquette, Jean-Sebastienen_ZA
dc.contributor.authorGeiger, Friedemannen_ZA
dc.contributor.authorLegare, Franceen_ZA
dc.date.accessioned2021-04-29T10:19:56Z
dc.date.available2021-04-29T10:19:56Z
dc.date.issued2021-02-11
dc.date.updated2021-02-14T05:26:02Z
dc.descriptionCITATION: Ben Charif, A., et al. 2021. Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey. Systematic Reviews, 10:55, doi:10.1186/s13643-021-01597-6.
dc.descriptionThe original publication is available at https://www.cochranelibrary.com
dc.description.abstractBackground: The scale-up of evidence-based innovations is required to reduce waste and inequities in health and social services (HSS). However, it often tends to be a top-down process initiated by policy makers, and the values of the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in HSS. Methods: We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge translation approach. This approach involves extensive participation of a network of stakeholders interested in patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers Manual. We will use the following eligibility criteria: (1) participants—any stakeholder involved in creating or testing a strategy for PPI; (2) intervention—any PPI strategy proposed for scaling-up initiatives; (3) comparator—no restriction; (4) outcomes: any process or outcome metrics related to PPI; and (5) setting—HSS. We will search electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand search relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an acceptable degree of agreement on research priorities. Discussion: Our findings will advance understanding of how to meaningfully and equitably involve patients and the public in scaling-up initiatives for sustainable HSS.en_ZA
dc.description.urihttps://systematicreviewsjournal.biomedcentral.com/articles/10.1186/s13643-021-01597-6
dc.description.versionPublisher's version
dc.format.extent9 pages
dc.identifier.citationBen Charif, A., et al. 2021. Strategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi survey. Systematic Reviews, 10:55, doi:10.1186/s13643-021-01597-6
dc.identifier.issn2046-4053 (online)
dc.identifier.otherdoi:10.1186/s13643-021-01597-6
dc.identifier.urihttp://hdl.handle.net/10019.1/110364
dc.language.isoen_ZAen_ZA
dc.publisherBMC (part of Springer Nature)
dc.rights.holderAuthors retain copyright
dc.subjectPatient and public involvementen_ZA
dc.subjectPublic health -- Evaluationen_ZA
dc.subjectPublic health -- Technological innovationsen_ZA
dc.subjectMedical cooperationen_ZA
dc.subjectDelphi methoden_ZA
dc.titleStrategies for involving patients and the public in scaling-up initiatives in health and social services : protocol for a scoping review and Delphi surveyen_ZA
dc.typeArticle
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