Choreographing life-experiences of balance control in people with Parkinson’s disease

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dc.contributor.authorLaGrone, Sofieen_ZA
dc.contributor.authorJoseph, Conranen_ZA
dc.contributor.authorJohansson, Hannaen_ZA
dc.contributor.authorEnberg, Birgiten_ZA
dc.contributor.authorFranzen, Erikaen_ZA
dc.date.accessioned2020-02-17T05:14:26Z
dc.date.available2020-02-17T05:14:26Z
dc.date.issued2020-02-10
dc.date.updated2020-02-16T04:22:32Z
dc.descriptionCITATION: LaGrone, S., et al. 2020. Choreographing life-experiences of balance control in people with Parkinson’s disease. BMC Neurology, 20:50, doi:10.1186/s12883-020-01632-4.
dc.descriptionThe original publication is available at https://bmcneurol.biomedcentral.com
dc.description.abstractBackground: Parkinson’s disease (PD) is a devastating neurodegenerative disorder. Reduced balance is one of the cardinal symptoms of PD, predisposing people living with PD to experience difficulties with the execution of tasks and activities, as well as hindering their involvement in meaningful life areas. The overarching aim of this study was to explore how deficits in balance control manifest in everyday life and how it is managed by people with PD (PwPD). Methods: Qualitative description was used as methodology, and in-depth interviews were conducted with 18 participants, between the ages of 46 to 83 years, with mild to severe PD. Interview transcripts were analyzed using qualitative content analysis, following an inductive approach. Results: One theme emerged from the analysis: Increased planning—choreographing life. Within this overarching theme, two categories were identified, namely Limitations in mobility and New restricted functioning in everyday life, each with 3–4 sub-categories. The categories described how PwPD handled decreased balance control in their everyday life by using motor and cognitive strategies as a consequence of not trusting their body’s capacity to control balance. Activities in everyday life, as well as the ability to partake in leisure and social activities were profoundly affected. Conclusion: People with mild to severe PD used strategies to handle decreased balance and they choreographed their lives around their individual current state of mobility and balance. The knowledge gained from this study can be used to develop targeted interventions addressing the nuances of balance deficits in everyday life.en_ZA
dc.description.urihttps://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01632-4
dc.description.versionPublisher's version
dc.format.extent9 pages
dc.identifier.citationLaGrone, S., et al. 2020. Choreographing life-experiences of balance control in people with Parkinson’s disease. BMC Neurology, 20:50, doi:10.1186/s12883-020-01632-4
dc.identifier.issn1471-2377 (online)
dc.identifier.otherdoi:10.1186/s12883-020-01632-4
dc.identifier.urihttp://hdl.handle.net/10019.1/107488
dc.language.isoen_ZAen_ZA
dc.publisherBMC (part of Springer Nature)
dc.rights.holderAuthors retain copyright
dc.subjectParkinson’s disease -- Patients -- Attitudesen_ZA
dc.subjectEquilibriumen_ZA
dc.titleChoreographing life-experiences of balance control in people with Parkinson’s diseaseen_ZA
dc.typeArticle
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