Centre for Medical Ethics and Law
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Clinical Ethics Committees in Africa : lost in the shadow of RECs/IRBs?
(BioMed Central, 2020)Background: Clinical Ethics Committees (CECs) are well established at healthcare institutions in resource-rich countries. However, there is limited information on established CECs in resource poor countries, especially ... -
A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi
(BMC (part of Springer Nature), 2020-07-20)Abstract : Background: There is growing interest in the collection, storage and reuse of biological samples for future research. Storage and future use of biological samples raise ethical concerns and questions about ... -
Consent for critical care research after death from COVID-19 : arguments for a waiver
(Health & Medical Publishing Group, 2020-05-26)Pandemics challenge clinicians and scientists in many ways, especially when the virus is novel and disease expression becomes variable or unpredictable. Under such circumstances, research becomes critical to inform clinical ... -
Isolation and quarantine in South Africa during COVID-19 : draconian measures or proportional response
(Health & Medical Publishing Group, 2020-04-23)In the midst of an unprecedented public health crisis, extraordinary containment measures must be implemented. These include both isolation and quarantine, either on a voluntary basis or enforced. In the transition from ... -
Critical care triaging in the shadow of COVID-19 : ethics considerations
(Health & Medical Publishing Group, 2020)Since the World Health Organization declared coronavirus disease 2019 (COVID-19) a Public Health Emergency of International Concern, COVID-19 infection and the associated mortality have increased exponentially, globally. ... -
ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa
(Academy of Science of South Africa, 2018)No abstract available. -
Medical students' perspectives on euthanasia and physician-assisted suicide and their views on legalising these practices in South Africa
(Health & Medical Publishing Group, 2018)Background. Euthanasia/physician-assisted suicide have been a controversial and sometimes taboo topic for a long time, not only in South Africa (SA) but also internationally. A recent (SA) judicial case has seen the topic ... -
The psychology of “cure” - unique challenges to consent processes in HIV cure research in South Africa
(BMC (part of Springer Nature), 2019-01-24)Background: Consent processes for clinical trials involving HIV prevention research have generated considerable debate globally over the past three decades. HIV cure/eradication research is scientifically more complex ... -
Exploring the ethics of global health research priority-setting
(BMC (part of Springer Nature), 2018-12-06)Background: Thus far, little work in bioethics has specifically focused on global health research priority-setting. Yet features of global health research priority-setting raise ethical considerations and concerns related ... -
Rules of engagement : perspectives on stakeholder engagement for genomic biobanking research in South Africa
(BioMed Central, 2018-02-27)Background: Genomic biobanking research is undergoing exponential growth in Africa raising a host of legal, ethical and social issues. Given the scientific complexity associated with genomics, there is a growing recognition ... -
Defining “sufficient maturity”: providing clarity on Section 129 of the Children’s Act
(Stellenbosch : Stellenbosch University, 2018-03)ENGLISH SUMMARY: It becomes increasingly clear that when one deals with a child that one is not only dealing with the child but the entities that are responsible for the child as well. One, however, becomes aware that the ... -
Disparate compensation policies for research related injury in an era of multinational trials : a case study of Brazil, Russia, India, China and South Africa
(BioMed Central, 2018-02-17)Background: Compensation for research related injuries is a subject that is increasingly gaining traction in developing countries which are burgeoning destinations of multi center research. However, the existence of disparate ... -
A System in Crisis: Ethical Concerns about Zimbabwean Healthcare in the 21st Century.
(Stellenbosch : Stellenbosch University, 2017-12)ENGLISH SUMMARY: Health care services in post-independent Zimbabwe have undergone turbulence with periods of seemingly significant improvements and other periods of definite decline. This thesis looks at health-care ... -
Ototoxicity management : an investigation into doctors’ knowledge and practices, and the roles of audiologists in a tertiary hospital
(AOSIS Publishing, 2016)Background: A significant number of medications that are prescribed by doctors to treat cancers, tuberculosis and infections are ototoxic. Disclosure of ototoxic risks is ethical practice as patients have the right to be ... -
Data mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?
(Health & Medical Publishing Group, 2016)Discovery Health, one of the leading healthcare funders in South Africa (SA), will offer genetic testing to its members for USD250 (approximately ZAR3 400) per test from 2016. On the surface, this appears to be innovative ... -
It’s all about trust : reflections of researchers on the complexity and controversy surrounding biobanking in South Africa
(BioMed Central, 2016)ENGLISH SUMMARY : Background: Biobanks are precariously situated at the intersection of science, genetics, genomics, society, ethics, the law and politics. This multi-disciplinarity has given rise to a new discourse in ... -
Autonomy of the child in the South African context : is a 12 year old of sufficient maturity to consent to medical treatment?
(BioMed Central, 2016-11-02)Background: A child is a developing person with evolving capacities that include autonomy, mental (decisional) capacity and capacity to assume responsibility. Hence, children are entitled to participatory (autonomy) rights ... -
Informed consent in paediatric critical care research : a South African perspective
(BioMed Central, 2015-09)Background: Medical care of critically ill and injured infants and children globally should be based on best research evidence to ensure safe, efficacious treatment. In South Africa and other low and middle-income countries, ... -
"It’s all about trust" : reflections of researchers on the complexity and controversy surrounding biobanking in South Africa
(BioMed Central, 2016)Background: Biobanks are precariously situated at the intersection of science, genetics, genomics, society, ethics, the law and politics. This multi-disciplinarity has given rise to a new discourse in health research ... -
The fabricius decision on the Stransham-Ford case – an enlightened step in the right direction
(2015)Many diseases are associated with incredible pain and suffering. Others impair function and independence to the extent that human dignity is eroded. In many instances the natural history of such conditions often leads ...
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