The refinement of a booklet on stroke care at home
Date
2008-03
Authors
Botha, J. H.
Journal Title
Journal ISSN
Volume Title
Publisher
Stellenbosch : University of Stellenbosch
Abstract
Stroke is the second commonest cause of mortality worldwide and remains a leading
cause of adult physical disability. It is estimated that sixty percent of South African
stroke survivors require assistance with at least one activity of daily living. This
burden is predominantly on the shoulders of mostly untrained caregivers.
The process of enabling caregivers to make choices conducive to their own health as
well as the health of the stroke survivors is multidimensional. One of the cornerstones
of this process is the provision of information. In 1995, the Centre for Rehabilitation
Studies of the University of Stellenbosch started to develop a training package for
stroke care at home. The training takes the form of an interactive workshop and a
booklet with practical information. The aim of this study was to refine and pilot this
booklet for implementation with the training.
The study found that existing guidelines to evaluate the appropriateness of written
material for developing communities (measured by Hugo’s grading model), were
inadequate. Consequently, a new checklist, based on twenty existing checklists, was
compiled. This list, as well as the Suitability Assessment of Material (SAM), was used
to evaluate the booklet and make recommendations for a pre-pilot refinement. Even
though this checklist has not been validated, it revealed similar results to the SAM
when applied to the booklet. After cosultation with the authors, improvements were
effected to the booklet
The booklet was tested with four samples of the target audience. The functional
literacy of the participants was determined using a standardised literacy test. A fifth
sample completed a questionnaire on their preference between the pre- and postrefined
booklet. Experts in the field of rehabilitation and graphic design also
commented on the booklet.
This study confirmed the need of stroke survivors and their caregivers for written
health information. The refined booklet was found to be an appropriate tool to
address the needs of the target audience. The participants perceived the booklet as
useful and comprehensible and the readability level was shown to correspond with the tested literacy level of the samples. However, there is a need for printed material on
topics related to stroke not currently covered in the booklet, e.g. spasticity.
This study showed that the checklist could be used to tailor written health information
that is preferred by the target audience. It confirmed that the testing of printed
material with stakeholders could expose additional gaps after applying the checklist.
Recommendations for further improvements were made based on the comments of
the participants.
It is foreseen that the new checklist could be a valuable tool for developing future
written health material. Finally, it is recommended that an interdisciplinary team that
includes a graphic designer be involvement from the planning stages.
Description
Thesis (MScMedSc (Rehabilitation))--University of Stellenbosch, 2008.
Keywords
Written health information, Caregiving, Stroke, Health education, Dissertations -- Rehabilitation, Theses -- Rehabilitation, Dissertations -- Medicine, Theses -- Medicine, Cerebrovascular disease -- Patients -- Home care, Caregivers -- Handbooks, manuals, etc.