From patient to person: an investigation of Type 1 Diabetes through critical discourse analysis and creative practice

Date
202406
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Stellenbosch : Stellenbosch University
Abstract
ENGLISH ABSTRACT: This thesis investigates how I, as a creative practitioner and researcher, can challenge contemporary depictions of people living with Type 1 Diabetes as the unhealthy ‘other’. This thesis aims to examine the medical gaze in the context of Type 1 Diabetes (T1D) and its experiential aspects, encompassing historical and contemporary perspectives. I employ critical discourse analysis to challenge the discourses that shape the societal perception of chronic illness (and Type 1 Diabetes specifically). I examine the social construction of illness, rooted in the sociology of illness, and the stigmatising meanings it engenders. Through an analysis of the ‘medical banal’, I investigate how people living with Type 1 Diabetes are further alienated by medical aesthetics, which they encounter in the form of medical packaging, blood sugar data displays, and waiting rooms. In an attempt to create a basis for my own creative practice, I analyse the works of artists addressing, adopting, subverting, and challenging the medical banal through their creative practices. This research-based investigation serves as the basis of my own creative practice in which I employ practice-based research methods to investigate alternatives to the bio-medical model and produce a practical body of ceramic work to challenge normative depictions of Type 1 Diabetes. By situating my creative practice in the contemporary context, and investigating new methods and mediums through which the medical banal can be questioned, I aim to contribute a critical investigation of how creative practice can serve as an effective means of challenging the clinical gaze as it pertains to the lived experience of Type 1 Diabetes.
AFRIKAANSE OPSOMMING: Hierdie tesis ondersoek hoe ek, ‘n kreatiewe praktisyn en navorser, die hedendaagse uitbeeldings van mense wat met Tipe 1-Diabetes (T1D) wat as ongesonde “verstotelinge” beskou word, kan ondersoek en uitdaag. Die tesis poog om die medical gaze (mediese blik) te ondersoek in die konteks van Tipe 1-Diabetes en die ervaringsaspekte daarvan, wat historiese en hedendaagse perspektiewe insluit. Dit maak gebruik van kritiese diskoersanalise om die diskoerse wat die samelewingspersepsie van chroniese siekte (en spesifiek Tipe 1-Diabetes) vorm, uit te daag met verwysing na die sosiologie van siekte. Ek ondersoek die sosiale konstruksie van siekte en die stigmatiserende betekenisse wat dit veroorsaak. Deur ‘n analise van die medical banal (mediese banalieit), ondersoek ek hoe mense wat met Tipe 1-Diabetes leef vervreem word deur mediese estetika wat hulle in die vorm van mediese verpakking, bloedsuikerdata voorstellings en in wagkamers ervaar. In ‘n poging om ‘n verdere basis vir my eie kreatiewe praktyk te skep, ontleed ek die werke van kunstenaars wat die mediese banaliteit deur hul kreatiewe praktyke aanspreek, aanneem, omkeer en uitdaag. Hierdie navorsingsgebaseerde ondersoek dien as die basis van my eie kreatiewe praktyk waarin ek praktykgebaseerde navorsingsmetodes gebruik om alternatiewe vir die bio-mediese model te ondersoek en ‘n praktiese liggaam van keramiekwerk te produseer om normatiewe uitbeeldings van Tipe 1-Diabetes uit te daag. Deur my kreatiewe praktyk in die hedendaagse konteks te plaas en nuwe metodes en media te ondersoek waardeur die mediese banaliteit in twyfel getrek kan word, beoog ek om ‘n kritiese ondersoek to doen van hoe kreatiewe uitsette as ‘n effektiewe middel kan dien om die mediese blik (in verband met die geleefde ervaring van Tipe 1-Diabetes) uit te daag.
Description
Thesis MA (VA)--Stellenbosch University, 2024.
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