Data mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?

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dc.contributor.authorStaunton, Ciaraen_ZA
dc.contributor.authorMoodley, Keymanthrien_ZA
dc.date.accessioned2017-10-18T13:56:43Z
dc.date.available2017-10-18T13:56:43Z
dc.date.issued2016
dc.descriptionCITATION: Staunton, C. & Moodley, K. 2016. Data mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?. South African Medical Journal, 106(2):136-138, doi:10.7196/SAMJ.2016.v106i2.10248.en_ZA
dc.descriptionThe original publication is available at http://www.samj.org.zaen_ZA
dc.description.abstractDiscovery Health, one of the leading healthcare funders in South Africa (SA), will offer genetic testing to its members for USD250 (approximately ZAR3 400) per test from 2016. On the surface, this appears to be innovative and futuristic. However, a deeper look at this announcement reveals considerable problems in the exportation of biological samples and data out of SA, and brings into sharp focus the lack of protection in place for potential donors. In return for a reduced-cost genetic test, which will nevertheless be billed to a member’s savings plan, data from the patient’s results, and probably the sample itself, will be sent to the USA for storage, research purposes and possible commercial use, with no further benefit for the patient. This development has demonstrated the need for more stringent protection of the movement of biological samples and data out of SA, particularly with reference to consenting procedures, material transfer agreements, and the export of biological data themselves.en_ZA
dc.description.urihttp://www.samj.org.za/index.php/samj/article/view/10248
dc.description.versionPublisher's versionen_ZA
dc.format.extent3 pagesen_ZA
dc.identifier.citationStaunton, C. & Moodley, K. 2016. Data mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?. South African Medical Journal, 106(2):136-138, doi:10.7196/SAMJ.2016.v106i2.10248en_ZA
dc.identifier.issn2078-5135 (online)
dc.identifier.issn0256-9574 (print)
dc.identifier.otherdoi:10.7196/SAMJ.2016.v106i2.10248
dc.identifier.urihttp://hdl.handle.net/10019.1/102357
dc.language.isoen_ZAen_ZA
dc.publisherHealth & Medical Publishing Groupen_ZA
dc.rights.holderSouth African Medical Journalen_ZA
dc.subjectBiological sample exportationen_ZA
dc.subjectBiomedical ethics -- South Africaen_ZA
dc.subjectBiological specimens -- Law and legislation -- South Africaen_ZA
dc.subjectBiological specimens -- Exploitation -- South Africaen_ZA
dc.subjectBiobanks -- Law and legislation -- South Africaen_ZA
dc.subjectHuman chromosome abnormalities -- Diagnosis -- South Africaen_ZA
dc.titleData mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?en_ZA
dc.typeEditorialen_ZA
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