A renal registry for Africa : first steps

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dc.contributor.authorDavids, M. Razeenen_ZA
dc.contributor.authorEastwood, John B.en_ZA
dc.contributor.authorSelwood, Neville H.en_ZA
dc.contributor.authorArogundade, Fatiu A.en_ZA
dc.contributor.authorAshuntantang, Gloriaen_ZA
dc.contributor.authorGharbi, Mohammed Benghanemen_ZA
dc.contributor.authorJarraya, Faicalen_ZA
dc.contributor.authorMacPhee, Iain A. M.en_ZA
dc.contributor.authorMcCulloch, Mignonen_ZA
dc.contributor.authorPlange-Rhule, Jacoben_ZA
dc.contributor.authorSwanepoel, Charles R.en_ZA
dc.contributor.authorAdu, Dwomoaen_ZA
dc.date.accessioned2017-08-07T06:28:08Z
dc.date.available2017-08-07T06:28:08Z
dc.date.issued2016
dc.descriptionCITATION: Davids, M. R., et al. 2016. A renal registry for Africa: first steps. Clinical Kidney Journal, 9(1):162–167, doi:10.1093/ckj/sfv122.
dc.descriptionThe original publication is available at https://academic.oup.com
dc.description.abstractENGLISH ABSTRACT: There is a dearth of data on end-stage renal disease (ESRD) in Africa. Several national renal registries have been established but have not been sustainable because of resource limitations. The African Association of Nephrology (AFRAN) and the African Paediatric Nephrology Association (AFPNA) recognize the importance of good registry data and plan to establish an African Renal Registry. This article reviews the elements needed for a successful renal registry and gives an overview of renal registries in developed and developing countries, with the emphasis on Africa. It then discusses the proposed African Renal Registry and the fi rst steps towards its implementation. A registry requires a clear purpose, and agreement on inclusion and exclusion criteria, the dataset and the data dictionary. Ethical issues, data ownership and access, the dissemination of fi ndings and funding must all be considered. Well-documented processes should guide data collection and ensure data quality. The ERA- EDTA Registry is the world ’ s oldest renal registry. In Africa, registry data have been published mainly by North African countries, starting with Egypt and Tunisia in 1975. However, in recent years no African country has regularly reported national registry data. A shared renal registry would provide participating countries with a reliable technology platform and a common data dictionary to facilitate joint analyses and comparisons. In March 2015, AFRAN organized a registry workshop for African nephrologists and then took the decision to establish, for the fi rst time, an African Renal Registry. In conclusion, African nephrologists have decided to establish a continental renal registry. This initiative could make a substantial impact on the practice of nephrology and the provision of services for adults and children with ESRD in many African countriesen_ZA
dc.description.abstractAFRIKAANSE OPSOMMING: Geen opsomming beskikbaaraf_ZA
dc.description.versionPublisher's version
dc.format.extent6 pagesen_ZA
dc.identifier.citationDavids, M. R., et al. 2016. A renal registry for Africa: first steps. Clinical Kidney Journal, 9(1):162–167, doi:10.1093/ckj/sfv122
dc.identifier.issn2048-8513 (online)
dc.identifier.issn2048-8505 (print)
dc.identifier.otherhttps://academic.oup.com/ckj/
dc.identifier.urihttp://hdl.handle.net/10019.1/102059
dc.language.isoen_ZAen_ZA
dc.publisherOxford University Press European Renal Associationen_ZA
dc.rights.holderAuthors retain copyrighten_ZA
dc.subjectPediatric nephrology -- Africaen_ZA
dc.subjectNephrological services -- Africaen_ZA
dc.subjectRenal intensive careen_ZA
dc.subjectDialysisen_ZA
dc.titleA renal registry for Africa : first stepsen_ZA
dc.typeArticleen_ZA
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