Browsing by Author "de Lange-Cloete, Frances"
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- ItemThe development of a self-management intervention for adolescents living with HIV in a South African context : views of experts and key stakeholders(Stellenbosch : Stellenbosch University, 2022-04) de Lange-Cloete, Frances; Crowley, Talitha; Stellenbosch University. Faculty of Medicine and Health Sciences. Dept. of Nursing & Midwifery.ENGLISH SUMMARY: Background Globally, many adolescents are living with human immunodeficiency virus (HIV). In South Africa, an estimated 360 000 adolescents were living with HIV in 2019. Adolescents also have poor health outcomes when compared to adults and children living with HIV. HIV is no longer recognised as an acute but rather a chronic condition involving lifelong medication and long-term holistic support and care. Self-management is an approach that may be helpful in changing behaviours, which could essentially lead to positive health outcomes. More research on self-management interventions is needed in the South African context to serve the unique needs of the adolescents to improve their treatment outcomes and quality of life. An adolescent HIV self-management intervention was developed in the context of South Africa using intervention mapping. As part of the development process, expert and stakeholder input is required. Aim: The study aimed to explore the views of experts and key stakeholders as part of the development of a self-management intervention for ALWH in a South African context, to refine the intervention. Methods For this study, a descriptive qualitative design was used. The intervention’s content validity was determined by consulting nine national and international experts. Moreover, the revised intervention was presented to 18 key stakeholders (11 adolescents living with HIV and 7 healthcare workers) during four focus groups in the Cape Metropole of the Western Cape to obtain further feedback. Data were analysed using the content validity index (CVI) and thematic analysis. Ethical approval was obtained from the Health Research Ethics Committee of the University of Stellenbosch, and permission was obtained from the Western Cape Department of Health. The researcher aimed to meet the four criteria of dependability, confirmability, credibility, and transferability to ensure trustworthiness. Results: Item relevancy for all the components (outcomes, objectives, strategies, format, setting, timing, and facilitators) had a CVI rating of more than 0.8, indicating validity. Experts and key stakeholders agreed on the need for and importance of the intervention, emphasising the focus on ALWH’s well-being, and objectives and content beyond HIV. The practical strategies appeared acceptable and feasible, but individual counselling/coaching may require additional human resource support. Components were revised based on the feedback, and several parameters for effective implementation were identified. Conclusion: Progress in health outcomes among ALWH is lagging. Interventions and programmes that are showing promising results in supporting ALWH should be placed at the forefront of development. Following further refinement, this intervention might be a solution to ALWH in South Africa and the African context, which may support and guide them and healthcare workers in reaching treatment targets and ensuring a thriving population of ALWH.