Doctoral Degrees (Centre for Disability and Rehabilitation Studies)

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Browsing Doctoral Degrees (Centre for Disability and Rehabilitation Studies) by browse.metadata.advisor "Swartz, Leslie"

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    Disability and health care access in an isolated quarter of the Karoo
    (Stellenbosch : Stellenbosch University, 2015-04) Visagie, Surona; Swartz, Leslie; Stellenbosch University. Faculty of Health Sciences. Dept. of Interdisciplinary Health Sciences. Centre for Rehabilitation Studies.
    ENGLISH ABSTRACT: Introduction: High quality comprehensive health care services contribute to community integration and participation of persons with disability. However, persons with disabilities often experience barriers with regard to health care access. Neither these barriers nor the concept of disability have been sufficiently explored in rural Global South settings. This study describes the experience of living with a disability in a remote, rural setting with a specific focus on barriers and facilitators to health care access. Method: A qualitative design utilising case study methodology and interpretative phenomenological analysis was used. The study population consisted of 283 persons with moderate or severe activity limitations, who lived in a rural town in the Northern Cape Province of South Africa. Eight of them were purposively sampled as anchor participants in eight case studies. Their significant others completed each case study. In addition data were collected from six service providers to the study community. Data were collected through 19 in-depth interviews and one focus group discussion, between March and October 2012. The principles of interpretative phenomenological analysis were used to analyse data and identify themes. Similar themes were clustered under superordinate themes. Cases were analysed separately after which patterns across cases were identified. Results: Participants conceptualised disability as an individual problem according to the moral or medical approaches and often interpreted disability as physical in nature. Participants’ level of participation and community integration varied from very little to being employed and well integrated. Self-belief and the attitude and support of significant others, community members and employers played an important role in the level of participation persons with disability achieved. Participants’ primarily utilised public, formal, health care services. These services were found to be mainly curative and preventative in nature. The provision of health promotion and rehabilitation were lacking. Users were not empowered to take control of their own health management and were not included in the health care team. Health system barriers identified included insufficient human and material resources, communication challenges, Stellenbosch University https://scholar.sun.ac.za iv and rigid protocols. The remoteness of the setting hampered health care service delivery. Free health care provision, high quality services at tertiary level, and outreach services to the community were identified as facilitators. A lack of products and technology, poverty, and low levels of education created further barriers to community integration and health care access. Implications: Suboptimal health care together with personal and environmental barriers might have resulted in poor health, functional, community integration, and participation outcomes for participants. Health care was provided reactively to individual users and not according to the principles of primary health care. The little rehabilitation that was provided was not enough to ensure improved functioning or community integration and participation. Recommendations: Since this was an inductive study with few participants recommendations centre on hypotheses for further study. The focus of these theories is on ways to provide health care according to the philosophy of primary health care and on introducing specific rehabilitation programmes in the community.