The impact of stigma and discrimination against people living with HIV and AIDS: An investigation into why family members attrbute death to other diseases
Thesis (MPhil)--Stellenbosch University, 2011.
ENGLISH ABSTRACT: This research paper is based on the perception of people over the death by HIV and Aids. It looks at the impact of culture and beliefs on the management of HIV and Aids in the community and also in the country as whole. This research aims to establish the root course of covering death of by HIV and Aids, often due to fear of discrimination and isolation. Communities need to be educated on discrimination and stigma that comes about with people living with HIV and Aids. This study was conducted at Mvelaphanda Primary School children, in Tembisa, Ekurhuleni Metropolitan Municipality in Gauteng, South Africa. The main focus was on the death of parents of the learners at the school and ultimately learners themselves, who some of them where born with HIV epidemic. Some of the children became orphans of the disease. The collection of data was in three fold: questionnaire, interview and observation and discussions. The information gathered was manipulated to bring about the expected results. Analysis of the data indicated that where there is no behavioral and attitude change, there would be more death by the pandemic than ever before. It is the responsibility of everyone, be it heads of families, religious leaders, politicians, business people and teachers to fight against the spread of HIV and Aids pandemic. This study has also discovered that medical report on the cause of death is concealed in order for policies to payout. This distortion of information does not help in the fight against the spread of HIV and Aids All stakeholders should work together in the support of those will disclose their status without fear of rejection, isolation and discriminated against. Schools, churches and community gatherings should be better used as a plat-form for that. If such conditions are created the spread of the HIV will be reduced and the prevention strategy will succeed.
AFRIKAANSE OPSOMMING: Die navorsing handel oor die persepsie van mense teenoor dood as gevolg van MIV/Vigs. Dit ondersoek die impak van kultuur en geloof op die bestuur van MIV/Vigs binne 'n gemeenskap in die besonder en binne die land in die algemeen. Die doel van die navorsing was om die grondoorsaak waarom daar dikwels gediskrimeer word teenoor persone wat sterf weens MIV te identifiseer en om te bepaal waarom mense wat met MIV leef dikwels “uitgewerp” word uit die gemeenskap. Die studie is gedoen by die Mvelaphanda Primêre Skool in Tembisa, in die Ekuhuleni Metropool van die Gauteng provinsie van Suid-Afrika. Die primêre fokus van die studie was op die invloed wat die dood as gevolg van Vigs op die kinders in die skool gehad het. Data is ingesamel deur middel van vraelyste en onderhoude asook deur waarneming en besprekings. Ontleding van die data het aangetoon dat indien daar nie positiewe gedragverandering plaasvind nie, daar meer sterftes as gevolg van Vigs verwag kan word. Daar word aanbevelings gemaak oor hoe belangroepe kan meehelp om stigma en diskriminasie te verminder en sodoende kan meehelp om die verdere verspreiding van die pandemie te beperk.