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Shared decision making and the practice of community translation in presenting a pre-final Afrikaans for the Western Cape Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire : a proposal for improved translation and cross-cultural adaptation

dc.contributor.authorDe Klerk, Susanen_ZA
dc.contributor.authorJerosch-Herold, Christinaen_ZA
dc.contributor.authorBuchanan, Helenen_ZA
dc.contributor.authorVan Niekerk, Lanaen_ZA
dc.date.accessioned2019-08-19T05:31:14Z
dc.date.available2019-08-19T05:31:14Z
dc.date.issued2019-08-14
dc.identifier.citationDe Klerk, S., et al. 2019. Shared decision making and the practice of community translation in presenting a pre-final Afrikaans for the Western Cape Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire : a proposal for improved translation and cross-cultural adaptation. Journal of Patient-Reported Outcomes, 3:52, doi:10.1186/s41687-019-0144-z
dc.identifier.issn2509-8020 (online)
dc.identifier.otherdoi:10.1186/s41687-019-0144-z
dc.identifier.urihttp://hdl.handle.net/10019.1/106369
dc.descriptionCITATION: De Klerk, S., et al. 2019. Shared decision making and the practice of community translation in presenting a pre-final Afrikaans for the Western Cape Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire : a proposal for improved translation and cross-cultural adaptation. Journal of Patient-Reported Outcomes, 3:52, doi:10.1186/s41687-019-0144-z.
dc.descriptionThe original publication is available at https://jpro.springeropen.com
dc.description.abstractBackground: Translation and cross cultural adaptation of patient reported outcome measures (PROMs) involves a step referred to as harmonisation, following forward and backward translation of the measure. This article proposes the introduction of methods not previously included in the process of harmonisation. The aim of the study was to introduce shared decision making (SDM) and the practice of community translation (CT) during the harmonisation of the Afrikaans for the Western Cape version of the Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire, a PROM that measures symptoms and activity and participation in persons with upper limb conditions. Methods: A broader approach to harmonisation is proposed by incorporating CT and SDM in addition to existing methods toward harmonisation. Participants (n = 8) involved in the harmonisation meeting included the principal investigator, a linguistic expert, occupational therapists with knowledge of the target population, context and the DASH questionnaire and members of the target population with and without upper limb conditions. A partnership was formed with the participants (a principle of SDM) and the principles of non-parallel CT and the CT approach were applied during harmonisation. Employing CT principles ensures that the norm for the translation is set by the population the translation is intended for. Results: Forward and backward translation of the DASH questionnaire presented a version of the measure in the target language for consideration during harmonisation. There were however a significant number of conceptually problematic items on the version presented at the meeting. Only seven items (7 of 30) remained unchanged. Conclusion: SDM and CT was used during the harmonisation of the Afrikaans for the Western Cape DASH questionnaire. Both these practices could have relevance in the translation and cross-cultural adaptation of PROMs where the translation is intended for persons from low socio-economic backgrounds and low levels of education.
dc.description.urihttps://jpro.springeropen.com/articles/10.1186/s41687-019-0144-z
dc.format.extent8 pages
dc.language.isoen_ZAen_ZA
dc.publisherSpringerOpen
dc.subjectCommunity translation -- Western Cape (South Africa)
dc.subjectPublic service interpreting -- Western Cape (South Africa) -- Decision makingen_ZA
dc.subjectAfrikaans languageen_ZA
dc.titleShared decision making and the practice of community translation in presenting a pre-final Afrikaans for the Western Cape Disabilities of the Arm, Shoulder and Hand (DASH) questionnaire : a proposal for improved translation and cross-cultural adaptationen_ZA
dc.typeArticleen_ZA
dc.date.updated2019-08-18T03:30:07Z
dc.description.versionPublisher's version
dc.rights.holderAuthors retain copyright


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