Community researchers conducting health disparities research: Ethical and other insights from fieldwork journaling

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dc.contributor.authorMosavel M.
dc.contributor.authorAhmed R.
dc.contributor.authorDaniels D.
dc.contributor.authorSimon C.
dc.date.accessioned2011-10-13T16:58:29Z
dc.date.available2011-10-13T16:58:29Z
dc.date.issued2011
dc.description.abstractLay persons who are trained to conduct research in their own communities form an essential part of many research projects. However, the effects of conducting research in their own communities have not been adequately explored. This paper examines the experiences, perceptions, and challenges faced by a group of community researchers during their involvement in a research project that examined if, and how, the relationships between mothers and their adolescent daughters could be harnessed to develop a daughter-initiated cervical cancer intervention. Seven community researchers interviewed 157 mother-daughter pairs in Cape Town, South Africa. We examine the use of journaling as a tool to document the experiences of community researchers, and we consider how journaling may help the community-based researcher grapple with the research process, and, more broadly, what such journal content illustrates with respect to the nature and challenges of community-engaged health research. An analysis of the content of the journals provides a strong indication of how personal and intimate the research process can be for community researchers by virtue of the background that they bring into the process as well as the additional weight of the research process itself. The complexities of navigating dual and somewhat oppositional roles - the role of impartial scientist or researcher and the role of invested community person - has been both underestimated and insufficiently researched. © 2011 Elsevier Ltd.
dc.description.versionArticle
dc.identifier.citationSocial Science and Medicine
dc.identifier.citation73
dc.identifier.citation1
dc.identifier.citationhttp://www.scopus.com/inward/record.url?eid=2-s2.0-79959582077&partnerID=40&md5=1e23eace88d86fff878a6216babae939
dc.identifier.issn2779536
dc.identifier.other10.1016/j.socscimed.2011.04.029
dc.identifier.urihttp://hdl.handle.net/10019.1/16744
dc.subjectChallenges
dc.subjectCommunity based participatory research (CBPR)
dc.subjectCommunity researchers
dc.subjectCommunity-engaged research
dc.subjectEthics
dc.subjectFieldwork
dc.subjectJournals
dc.subjectPeer researchers
dc.subjectSouth Africa
dc.subjectcancer
dc.subjectdisease treatment
dc.subjectethics
dc.subjecthealth care
dc.subjecthealth status
dc.subjectmethodology
dc.subjectparticipatory approach
dc.subjectperception
dc.subjectresearch work
dc.subjectwomens health
dc.subjectadult
dc.subjectarticle
dc.subjectfemale
dc.subjecthealth disparity
dc.subjecthuman
dc.subjectinterview
dc.subjectmother child relation
dc.subjectpersonal experience
dc.subjectpublishing
dc.subjectresearch ethics
dc.subjectSouth Africa
dc.subjectuterine cervix cancer
dc.subjectCape Town
dc.subjectSouth Africa
dc.subjectWestern Cape
dc.titleCommunity researchers conducting health disparities research: Ethical and other insights from fieldwork journaling
dc.typeArticle
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