Browsing Research Articles (Centre for Medical Ethics and Law) by Title
Now showing items 2-16 of 16
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Data mining and biological sample exportation from South Africa : a new wave of bioexploitation under the guise of clinical care?
(Health & Medical Publishing Group, 2016)Discovery Health, one of the leading healthcare funders in South Africa (SA), will offer genetic testing to its members for USD250 (approximately ZAR3 400) per test from 2016. On the surface, this appears to be innovative ... -
Disparate compensation policies for research related injury in an era of multinational trials : a case study of Brazil, Russia, India, China and South Africa
(BioMed Central, 2018-02-17)Background: Compensation for research related injuries is a subject that is increasingly gaining traction in developing countries which are burgeoning destinations of multi center research. However, the existence of disparate ... -
Dual loyalties, human rights violations, and physician complicity in apartheid South Africa
(American Medical Association, 2015-11)Introduction: From 1948 to 1994, South Africans were subjected to a period of sociopolitical segregation and discrimination based on race, a social experiment known as apartheid. South African history was tainted by a ... -
Engaging with Community Advisory Boards (CABs) in Lusaka Zambia : perspectives from the research team and CAB members
(BioMed Central, 2015)Background: The use of a Community Advisory Board (CAB) is one method of ensuring community engagement in community based research. To identify the process used to constitute CABs in Zambia, this paper draws on the perspectives ... -
The ethics of talking about ‘HIV cure’
(BioMed Central, 2015-03)Background In 2008, researchers reported that Timothy Brown (the ‘Berlin Patient’), a man with HIV infection and leukemia, received a stem-cell transplant that removed HIV from his body as far as can be detected. In 2013, ... -
Exploring the ethics of global health research priority-setting
(BMC (part of Springer Nature), 2018-12-06)Background: Thus far, little work in bioethics has specifically focused on global health research priority-setting. Yet features of global health research priority-setting raise ethical considerations and concerns related ... -
The fabricius decision on the Stransham-Ford case – an enlightened step in the right direction
(2015)Many diseases are associated with incredible pain and suffering. Others impair function and independence to the extent that human dignity is eroded. In many instances the natural history of such conditions often leads ... -
Informed consent in paediatric critical care research : a South African perspective
(BioMed Central, 2015-09)Background: Medical care of critically ill and injured infants and children globally should be based on best research evidence to ensure safe, efficacious treatment. In South Africa and other low and middle-income countries, ... -
It’s all about trust : reflections of researchers on the complexity and controversy surrounding biobanking in South Africa
(BioMed Central, 2016)ENGLISH SUMMARY : Background: Biobanks are precariously situated at the intersection of science, genetics, genomics, society, ethics, the law and politics. This multi-disciplinarity has given rise to a new discourse in ... -
"It’s all about trust" : reflections of researchers on the complexity and controversy surrounding biobanking in South Africa
(BioMed Central, 2016)Background: Biobanks are precariously situated at the intersection of science, genetics, genomics, society, ethics, the law and politics. This multi-disciplinarity has given rise to a new discourse in health research ... -
Medical students' perspectives on euthanasia and physician-assisted suicide and their views on legalising these practices in South Africa
(Health & Medical Publishing Group, 2018)Background. Euthanasia/physician-assisted suicide have been a controversial and sometimes taboo topic for a long time, not only in South Africa (SA) but also internationally. A recent (SA) judicial case has seen the topic ... -
Ototoxicity management : an investigation into doctors’ knowledge and practices, and the roles of audiologists in a tertiary hospital
(AOSIS Publishing, 2016)Background: A significant number of medications that are prescribed by doctors to treat cancers, tuberculosis and infections are ototoxic. Disclosure of ototoxic risks is ethical practice as patients have the right to be ... -
The psychology of “cure” - unique challenges to consent processes in HIV cure research in South Africa
(BMC (part of Springer Nature), 2019-01-24)Background: Consent processes for clinical trials involving HIV prevention research have generated considerable debate globally over the past three decades. HIV cure/eradication research is scientifically more complex ... -
Rules of engagement : perspectives on stakeholder engagement for genomic biobanking research in South Africa
(BioMed Central, 2018-02-27)Background: Genomic biobanking research is undergoing exponential growth in Africa raising a host of legal, ethical and social issues. Given the scientific complexity associated with genomics, there is a growing recognition ... -
Synergies, tensions and challenges in HIV prevention, treatment and cure research : exploratory conversations with HIV experts in South Africa
(BioMed Central, 2016-04-30)Background: The ethical concerns associated with HIV prevention and treatment research have been widely explored in South Africa over the past 3 decades. However, HIV cure research is relatively new to the region and ...
