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'I waited for it until forever' : community barriers to accessing intellectual disability services for children and their families in Cape Town, South Africa

dc.contributor.authorMkabile, Siyabulelaen_ZA
dc.contributor.authorSwartz, Leslieen_ZA
dc.date.accessioned2021-04-01T07:12:07Z
dc.date.available2021-04-01T07:12:07Z
dc.date.issued2020-11-17
dc.identifier.citationMkabile, S. & Swartz, L. 2020. 'I waited for it until forever' : community barriers to accessing intellectual disability services for children and their families in Cape Town, South Africa, International Journal of Environmental Research and Public Health, 17(22):8504, dio:10.3390/ijerph17228504.
dc.identifier.issn1660-4601 (online)
dc.identifier.otherdoi:10.3390/ijerph17228504
dc.identifier.urihttp://hdl.handle.net/10019.1/109735
dc.descriptionCITATION: Mkabile, S. & Swartz, L. 2020. 'I waited for it until forever' : community barriers to accessing intellectual disability services for children and their families in Cape Town, South Africa, International Journal of Environmental Research and Public Health, 17(22):8504, doi:10.3390/ijerph17228504.
dc.descriptionThe original publication is available at https://www.mdpi.com
dc.description.abstractBackground: Intellectual disability is more common in low- and middle-income countries than in high-income countries. Stigma and discrimination have contributed to barriers to people with intellectual disability accessing healthcare. As part of a larger study on caregiving of children with intellectual disability in urban Cape Town, South Africa, we interviewed a sub-group of families who had never used the intellectual disability services available to them, or who had stopped using them. Methods: We employed a qualitative research design and conducted semi-structured interviews to explore the views and perspectives of parents and caregivers of children with intellectual disability who are not using specialised hospital services. We developed an interview guide to help explore caregivers’ and parents’ views. Results: Results revealed that caregivers and parents of children with intellectual disability did not use the intellectual disability service due to financial difficulties, fragile care networks and opportunity costs, community stigma and lack of safety, lack of faith in services and powerlessness at effecting changes and self-stigmatisation. Conclusion: Current findings highlight a need for increased intervention at community level and collaboration with community-based projects to facilitate access to services, and engagement with broader issues of social exclusion.en_ZA
dc.description.urihttps://www.mdpi.com/1660-4601/17/22/8504
dc.format.extent13 pagesen_ZA
dc.language.isoen_ZAen_ZA
dc.publisherMDPIen_ZA
dc.subjectDisabilityen_ZA
dc.subjectIntellectual disabilityen_ZA
dc.subjectPediatricsen_ZA
dc.subjectSocial inequalityen_ZA
dc.title'I waited for it until forever' : community barriers to accessing intellectual disability services for children and their families in Cape Town, South Africaen_ZA
dc.typeArticleen_ZA
dc.description.versionPublisher's version
dc.rights.holderAuthors retain copyrighten_ZA


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